Please find on the right hand side, links to other partners that work with the BNMDR.
The registry gathers anonymous data for TREAT-NMD (Translational Research in Europe for the Assessment and Treatment of Neuromuscular Disease), which is a European network providing the infrastructure and registry-building tools to professionals since 2007. The genetic mutation and detailed clinical data is gathered for Duchenne Muscular Dystrophy and Spinal Muscular Atrophy. In addition to facilitating the creation of registries, TREAT-NMD maintains an updated list of disease-specific registries Europe-wide for participants’ networking purposes. With time, TREAT-NMD has expanded its research to other diseases. We too, hope to extend our data capturing and to be able to offer even more clinical trials to the patients.